Thursday 25 April 2013

A Very Special Sunday

Supporter Martin Hywood and his wife Michelle volunteered at last Sunday's Virgin London Marathon to help us cheer on our 103 Team Orange runners, including Martin's brother, Andrew.

06:20, Sunday, 21 April 2013...

Never have I hated my alarm clock so much as right now! Then as I slowly wake up and get my head together I realise why I'm being 'beeped' at... The 2013 London Marathon!

We're up, ready and set off to the station for the train. We're very lucky with our train journey, travelling through the Chilterns at this time of the morning is something else; the mist rolls off the hills to reveal a stunning patchwork quilt of forest and field. This takes away some of the anxiety I am feeling right now.

Friday 19 April 2013

Me and MD

You may wonder why I go on about Muscular Dystrophy. It’s because I’m lucky to have a lesser strain (Limb Girdle) and I have the ability to shout for those that can’t; and if I can make a difference then so can you.

Spinal Muscular Atrophy is the biggest genetic killer of infants and toddlers. Duchenne Muscular Dystrophy is the biggest genetic killer amongst boys and young men (only 1% of those affected are girls)