Wednesday, 15 June 2016

Deuce








Deuce (pronounced 'juice') comes from the French word 'deux', meaning 'two’. 

It’s very appropriate then that my next challenge is over a weekend and consists of two miles that are about 175 miles away from each other. I will be driving over 350 miles to walk just two miles.

Every effort made is now coming to fruition and I’m starting to see the light at the end of a very long, dark and adventurous tunnel. I’m very grateful for every donation that has been made and all those that have joined me on my challenge so far this year. 

I really wanted people to know how I’m feeling at this very minute as I know I have the biggest challenge to overcome very soon. Usually I would tell you about the hardships of living with Muscular Dystrophy but I also think it’s imperative that you know about the good times too. 

For the first time in I don’t know how long, I have been given a break from myself. I feel hardly any burning in my legs or hips, my knees feel secure, my lower back pain is manageable and I have no paranoia about falling. At the beginning of this year I organised the miles in this challenge so I would hit half way and then have June off to rest and recuperate, and that’s exactly what has happened. With this comes great relief. After our last mile at Wembley Stadium was complete I was a broken man, and this also coincided with a back problem. My pain threshold is huge but the pain I went through that week was the worst I’d felt in my life. I’ve given this month to Michelle and the girls and it’s been fantastic; BBQs, Beer, Lego and cuddles, just what the Doctor ordered (…..and he really did insist!) 

Success and exhaustion after Wembley

 
So we’re nearly on our way again. In just over two weeks’ time I will take on a mile to Wimbledon (2nd July) to watch the tennis, and then travel from South London to North Leeds to take on a mile to walk through Headingley to the Leeds Rhinos games against Widnes Vikings (3rd July).

I consider this to be the biggest part of my challenge due to distance and the exhaustion that I know I will feel. As I said, I can see the light and the reasoning behind what I’m doing now. The Wimbledon mile is happening because my wife has said every year she would love to go, so I’m going to make that happen and raise much-needed funds and research along the way. I won’t claim to be the biggest Rugby League fan, but I was introduced to the Leeds Rhinos club by a friend and the people there are simply amazing! As with most venues that I’ve asked to help me, they have responded with an amazing open-arms attitude of “how can we help you to help others?” 

I’m also very lucky to be joined on these miles by other people, and these details I will tell you about nearer the time, but one person that has helped with this whole project is Ralph Ineson. Ralph helped launch my short film at the very start of all of this and will be joining us at Wimbledon. Ralph has stayed in touch all year and constantly asks if I’m ok and if I need anything from him. 

So it’s Deuce; Muscular Dystrophy is not beating me and it is relentlessly trying to Ace me but I won’t let it. Deuce also represents the two challenges that I have in close succession of one and another. Don’t get me wrong I’m extremely nervous and apprehensive about the challenge ahead but it’s good for me and keeps me moving. I will take any positive offered up to me and make the best of a bad situation. I have also been encouraged all year by these young lads affected by the condition, and the likes of Tommy Lloyd and Archie Hill (pictured) push me on to keep going and they inspire me every day the way they handle and deal with their very own Muscular Dystrophy.

Tommy after completing his mile at the famous Iffley Road
Archie and myself at the Oval, London



As I’ve said before, some might say “why me, why did I get this diagnosis, why did I get this disability?” I say, why NOT me? I have been given an opportunity to help others, albeit a painful opportunity, but it is worth every effort. 

£7800.00 raised so far. 

220 hours of world class research paid for. 

Move a Mile for muscles, If I can, You can too. 



 

Donations can be made here...https://www.justgiving.com/fundraising/Martin-Hywood3

#MoveAMileForMuscles

#IfICanYouCanToo



Thursday, 19 May 2016

Half-time






At the start of this year I said that I would write a blog once a month, to explain the reasoning behind moving a mile at each of my chosen locations. I shouldn’t really need to explain why I’m walking to our national stadium; it is what it is. I really didn’t know where to start with writing this, but luckily I have been speaking to my pal, Jon Howe. Jon is an author (‘The Only Place For Us’), Leeds United writer and friend, and it was easy to break the ice talking about Wembley, which then made it slightly easier to start writing this.

On July 30th, fifty years ago, England won the World Cup at Wembley, which is reason enough for me to include it among the places I wanted to walk to, but in the team that day was one of the most famous Leeds United players; Jack Charlton. Jack was a one-club player, which is a very rare thing nowadays, with 773 appearances for Leeds. He was a champion at club and international level and his solidarity and dedication to my beloved Leeds United is something that impresses and inspires me, and makes me proud to talk about him. 

So what about Leeds United as a club and its relationship with Wembley? Jon and I spoke about it and he summarised that “it’s been a largely fractious relationship” with the sort of playful glint in his eye and the hint of resignation that is a staple characteristic of all Leeds fans. 

Jon supplied me with a list of Leeds’s ten Wembley appearances: 

1965 - FA Cup Final v Liverpool, lost 2-1 after extra time 

1968 - League Cup Final v Arsenal, won 1-0

1970 - FA Cup Final v Chelsea, drew 2-2 after extra time, lost replay at Old Trafford

1972 - FA Cup Final v Arsenal, won 1-0 

1973 - FA Cup Final v Sunderland, lost 1-0 

1974 - Charity Shield v Liverpool, 1-1, lost on penalties 

1988 - Mercantile Credit Football Festival v Nottingham Forest, lost 3-0

1992 - Charity Shield v Liverpool, won 4-3 

1996 - League Cup Final v Aston Villa, lost 3-0 

2008 - League One Play-Off Final v Doncaster Rovers, lost 1-0 

So a record of played 10, won three, drawn one and ultimately lost six (i.e. one on pens) 

“Obviously, only the last one (2008) was at the re-built Wembley,” Jon adds “but there are some notable points which make some of Leeds’s Wembley appearances quite significant.” 

Jon then reels them off: 

- the 1970 draw was the first FA Cup Final to ever go to a replay 

- the 1972 Final was the 'Centenary Cup Final' ie. 100 years since the first one in 1872, it wasn't the 100th actual final because there weren't any during the two world wars.

- the 1974 Charity Shield game was the first held at Wembley (all previous were held at the ground of one of the competing clubs) 

- also in 1974, Leeds's Billy Bremner and Liverpool's Kevin Keegan were both sent off, the first British players to ever be sent off at Wembley. 

- the 1988 Mercantile Credit game was an invitation tournament to celebrate 100 years of the Football League. Jon adds: “The Football League invited loads of teams to play over a weekend, and because of this each game lasted only 40 minutes, which makes Leeds’s achievement of still managing to lose 3-0 particularly impressive……” 

With the facts laid out above I must say the stand out memory for me was losing to Doncaster Rovers in 2008; similar to the Play-Off final we played against Watford in Cardiff in 2006. I was absolutely heart broken, Leeds simply didn’t turn up and I don’t think I spoke to anyone about football for about a month; I really was stunned and hurt by it. 

Jon also recalls some other Wembley memories: “I only went to the old Wembley twice, and both within a few months of each other in 1996. I went to the League Cup Final that we lost 3-0 to Villa and then in June I went to England’s 4-1 win over Holland in Euro 96. You couldn’t possibly dream up two more contrasting experiences.” 

This Euro 96 memory brings to mind one of my favourite ever Wembley goals; Gazza’s turn and volley against Scotland and the famous ‘Dentist Chair’ celebration during that famous summer that seemed to go on forever. 

Luckily Wembley stadium has given me more memories than just football. I have been more times than I can remember to see bands play gigs there. I once got back stage passes to see The Doves, Happy Mondays and Oasis play there and it was all because of a total blag. It’s a long story but a florist I used to do a lot of business with said to me “Go to a caravan in the car park at Wembley, take ID, and say your name and they will give you tickets”. Yeah, alright mate, I thought. Turns out he was right; myself and my wife got given a very big envelope full of “access all areas” passes. This led to a very far out conversation with Bez from the Happy Mondays, an eye witness account of a Gallagher brothers fall out and lots and lots of free alcohol; all in all, a very good day! 

Wembley also hosted Live Aid in 1985 and it is only since researching Wembley and contemplating writing this that I realise I should be grateful for that. It wasn’t until now that I realised how much this has inspired me, especially as I go through this year asking people and venues for help in trying to achieve what I want for the greater good. 

In the autumn of last year I had this idea to walk to iconic arenas and sporting events in England due to it being an Olympic year and also 50 years since England won the World Cup, and some people said I wouldn’t be able to do it and I wouldn’t get the co-operation that I needed. I have, I did and I still am doing all that I set out to do and more, because people before me made a stand for something that was important to them and I have learnt from that. 

On Sunday I’ll walk up Wembley Way with friends, thinking about Jack, Norman Hunter and the rest of the boys that made history for us to enjoy and indulge in. Like football and Leeds United I will not take myself for granted. I’ll enjoy thinking about the potted history lesson that myself and Jon spoke about earlier this week, and just the fact that I do still have the ability to make that walk up to our national stadium. 

Myself, Jon and friends, victorious in Leeds!


This is now over the half way point of my challenge, and time for a much-needed, but brief, rest. And I just wanted to say a sincere thank you to everyone that has helped me so far this year; the sponsorship, the social media activity, physically holding me up and the genuine friendship that has shone through. I could carry on and mention so many names but too many people have been too nice. Last time I checked there was still no cure for Muscular Dystrophy, but I do believe that the 219 hours of research we have funded so far will one day help to change that, and that would not be possible without the people that have helped me. 


From the bottom of my heart, thank you! X 




You can follow me on twitter here https://twitter.com/HywoodMartin
You can follow Jon on twitter here https://twitter.com/jonhowe1971
 
#MoveAMileForMuscles

#IfICanYouCanToo 

All donations really are appreciated https://www.justgiving.com/fundraising/Martin-Hywood3

You Tube https://www.youtube.com/watch?v=j__H3GJm_1Q
 

Tuesday, 10 May 2016

The Dreams We Have as Children



It wasn’t supposed to be like this… I wasn’t supposed to be where I am today, but I am, and there’s nothing I can do about it apart from dig in and make the most of the alternative opportunities that I wasn’t expecting.
  
I have always been a fixer (or tried to be!); I used to repair broken Walkmans or stereos in my early teens. I remember my dad giving me the use of his soldering iron and other tools and that was Martins workshop set up. The 80s was my era for growth, both with business, engineering and just trying to help others make the most of what was then a very expensive purchase that would unfortunately break quite easily. My entrepreneurial instinct was born and I was the go-to kid to get things fixed. 

Another influence was our neighbour, Colin. Colin was part of a banger racing team and I was always at his garage on a Sunday morning stripping cars, installing scaffolding and going for the occasional test drive on private land (much to my mum’s dismay!) 

All I ever wanted to do was fix cars and get involved with motor vehicle engineering, and I also knew that this would take me into a world of motorsport too. It was a massive passion of mine, and it was something I just knew would happen, and what a chance and start I got at it too! 

My parents were adamant that I got a job immediately after leaving school, I needed a trade behind me then I could go off and do anything I wanted and come back to it if I ever needed. I landed on my feet. I started a weekend job at a local Porsche racing team. As you would expect it was all sweeping and tea-making to start with, but things ramped up quickly and I was on body detail before I knew it. Alas it did not last; I had to get a “proper job”, so I did. 

I left school on a Friday afternoon and started my first job as an apprentice motor vehicle engineer on the Monday morning. Again, I started with tea-making and lots of sweeping but before I knew it I was overhauling engines, stripping steering and suspension systems, welding and making modifications. It was a time where people slightly older than myself were driving RS Escorts, boosted Minis or tricked-up VW Beetles. 

We were also carrying out MOT tests and all of this was giving me the knowledge that I craved, like a sponge I was taking it all in, learning more and more. And it was with all this education, and what I consider a natural ability to use my hands to fix things, that I took myself away from this workshop and went to work for another for more money. I had been headhunted and it felt fantastic! 

I wasn’t there long and I had a fall, I slipped in the workshop, dislocated my knee and from there my life was going to change forever…. 

My leg simply would not get better in the time expected and I was transferred from one hospital to another. 20 years ago, pretty much to this day, I was sat in a consultant’s room in a hospital in Oxford and I was diagnosed with Muscular Dystrophy. I was told there was no treatment or cure for the condition, and I was also told I would need to change lots of things in my life, including the career and job that I had dreamt of and fallen in love with. All of this, and I had just met Michelle; the woman who I would spend the rest of my life with.  

I knew that I had to be in a place where I could help myself and see what people were doing to find a solution for this problem that I had. I knew that I had to be in a different industry and all I knew was cars! So, naturally and quite quietly in my own time, that’s what I did. 

I had a plan; it was to use all that I knew and transfer that to an office environment. I started as a collection and delivery driver for Volkswagen and luckily got a move into fleet car sales. This also gave me some I.T. skills, and when I was comfortable I used those to move into another profession and industry. This all took place over 15 years and I did have a few breaks and different jobs in between. Now I work in the Pharmaceutical industry and use my I.T. skills to help with clinical trials, and I can see progress in the industry for many different conditions including Cancer, Stroke, Alzheimer’s and, indeed, Muscular Dystrophy. 

Now we’ve gone a bit full circle, as this week I will be fulfilling a dream that actually may not have been made possible without the diagnosis I received. I challenged myself to ‘Move a Mile for Muscles’ once a month in 2016 and one of those challenges was to race a BMW M3 around Brands Hatch; and now I will, all made possible with the help of such great friends.  

My love of motor vehicle engineering, motorsport and speed has been jumpstarted and we go again! 

Keeping The Dream Alive - BMW M3


It may not be much, it might not seem like a big deal, but we should never lose the passion for something we love and have a desire to do in whatever capacity. My miles around the track may not be in a competitive environment, but I’m doing my best to help myself and also now helping others. We have raised £7,346.87 so far this year and this equates to 209 hours of world class research into this condition. 

My condition will not affect the person that I am or want to be, in fact, quite ironically as I get weaker, in many other respects I feel stronger, every day I feel more determined than ever. The dreams we have as children may not be a reality as adults, but we can fight to come close. My desire to keep moving is constantly increased, and with this, my smile broadens as those around me have faith and accompany me on these adventures that are making 2016 one of the best years of my life. 
  

Move a Mile for Muscles in 2016. If I can, you can too!



You can follow me on Twitter here... https://twitter.com/HywoodMartin

#MoveAMileForMuscles
#IfICanYouCanToo






Friday, 22 April 2016

The Marathon Mile.

I am the furthest away from being a morning person. I am especially fond of doing absolutely nothing on a Sunday morning; a slow rise with a nice coffee and the thought of a gut-busting feast is usually the catalyst for a good, lazy day.

Except on one Sunday of the year; Marathon day! Not that I’m running or taking part but I have always been a supporter, a flag waving, balloon holding, big mouth. And that’s exactly what the participants need; it’s one of the few times in my life that using my loud, vocal ability is welcomed.

There will be around 38,000 runners doing their best to raise between £45,000,000 and £50,000,000 for so many worthy causes. After months of training it all comes down to one day and 26.2 miles.

This year I decided to ‘Move a Mile for Muscles’ to many different sporting events or iconic sporting arenas to raise funds and awareness for Muscular Dystrophy UK (MD UK). The reason for that is I have a condition called Limb Girdle Muscular Dystrophy myself and need to try to help those that are trying to help me and thousands of other people in the UK with a neuromuscular condition.

I have great difficulty walking but I still can, so I will, I’ve always been that way; very fortunate to make the best out of a bad situation. Besides, all these miles, all these mountains I’m climbing are actually helping me to keep moving and to stay as fit as I possibly can be whilst being a positive role model for those around me. It’s been a tough year but I’m loving it, I keep repeating all the clichés in my head “Pain is temporary, quitting lasts forever” , actually pain lasts for ages in my legs but, you see, there is always people worse off than me and I’m very grateful to be able to move as much as I can.

Another thing I’m grateful for is my family and friends. One friend who I met through MD UK is Bernie Henderson; Bernie is a legend amongst the marathon circuit and is rightfully the Ambassador and the go-to-guy when in need of advice for long distance running. Earlier this year Bernie joined me at the famous Iffley Road track in Oxford where Roger Bannister broke the four minute mile. We were joined by other members of ‘Team Orange’ and it gave us a chance to chat and talk about many different things including the importance of supporters at the London Marathon. Bernie has since put pen to paper and here is what it means from a runners perspective…


The Importance of the spectator.


“The London Marathon holds a special place in my heart since I ran in the first race in 1981. In those days very few people ran and observers would give you very strange looks as you trained along pavements and I'm sure many thought I must have be escaping from a crime scene. I was keen on all sports but was not a runner and I was inspired by Chris Brasher, along with 7000 others, to take up the challenge. I was supported, despite very wet weather, by my mother-in-law, my wife and my 9 month old daughter and a huge throng of Londoners. They were brilliant and I loved it.

Wind forward 25 years to 2005 and that baby had grown up and was a lawyer in London. She challenged me to try again with her and asked me to choose a charity. I spoke to Muscular Dystrophy UK (or Campaign as it was then) as I had worked with many young people with the condition. Little did we know that somebody very precious to us would be diagnosed with Duchenne's three days later.

That race took on a particular significance as we raised over £8000, but injury struck a few weeks before the race. Dreadful pain in my knee told me I couldn't race but there was no way I could back out. Time for fancy dress I thought ...... and the charity's mascot Rupert Bear. The crowd loved the outfit more than me. From the moment I got on the train my photo was taken by everybody (in the days before selfies). During my run (and walk) I was surrounded by enthusiastic fellow runners and the air was filled with the song, "Rupert, Rupert the Bear". At each drink station I'd stop and give my head to a nearby police officer. Most took this is in good spirit but some were unsure quite what to do with it.

That was the day I realised the power of the crowd. It took me over six hours and the route was lined throughout with people staying to encourage us back markers to keep on going. Spectators hung out of windows on high, stood on roofs and sheltered under flyovers where the noise echoed around to create a wall of sound.

This year, at the age of 61, I hope to start my 12th London Marathon. I've raced it in 3hr 7min and experienced a number of slower runs in fancy dress. I've run through to the finish in some with nothing more than tiredness, while I've hobbled in others after picking up some injury or another. I've run it on cold, wet days and, after training throughout the winter months, I've run it in heat waves!

The one constant is the support provided every year by thousands and thousands of fabulous supporters. I defy anybody to fail to be motivated by the generosity of spirit shown at each and every London Marathon. Normally quiet individuals shout and scream names of people they will never see again as if they were their best friends. My favourite place and the star of the marathon is Tower Bridge. As runners, we pass the mile 12 marker then quickly turn right and are confronted by the iconic structure adorned with colours of every hue. Home to supporter points for many charities, the crowds can be 10 deep in places. The noise is incredible and you'll see runners pick up their pace and smile like never before.

After circumventing Canary Wharf, runners come back to the bridge and on to the Embankment. Once again, at the point where you may not know how you can keep going, you are lifted by the crowd. At best you will be tired but at worst you'll be nursing some injury. They appear to have a sixth sense of knowing who to shout for and what to say. They drag you along until you hit mile 25. A mile to go and nothing will stop you now. The final mile passes quickly as you are immersed in the shouts and calls. Finally, you are upon the long, long bend in front of the Palace and then… the finish line. There is a strange hush after you cross the line. Everyone is breathless and, as often happens, after running miles with a 'new friend' you've met along the way, you shake hands and go your own way.

This year will see the one millionth runner cross the finish line for the London Marathon. Many wouldn't have made it without the millions and millions of supporters, who have helped them, year after year, every step of the way. I love and thank them all.”

Myself, Bernie and Mark Sammon - Team Orange. Iffley Rd, Oxford



As well as others, I cannot wait to cheer Bernie on when Sunday comes around. I mean absolutely everyone that passes me by, it doesn’t matter who they’re running for I will shout my loudest and support them, I will look for the name on their vest to give them the recognition and support they deserve. These people are the selfless ones, these people are the ones that have given up lots of hours to be on the tarmac in front of us.

All the runners on Sunday will be cheered by ‘Team Orange’, it’s what we do, and we’re famous for it. I hope that I never know anyone that will need these charities, they are all amazing and the jobs they do are priceless, but if nobody needs them it means my family and friends are fit and well. Cancer charities, Stroke, The Heart Foundation, Alzheimer’s and the list goes on, I do hope we never need you because that means we’re ok.

What about me and my miles? Well like I said, it’s been a tough year but the adventure is real, exciting and also exhausting, but I’ve learnt it’s not all about me. When I feel like stopping I can’t, I have to think of others, there is a much bigger picture. It would be easy to stop but then that becomes a habit in life. I realise there are shortcuts out there, easier roads I could travel but that would never inspire anyone. Not that I’m inspirational, that’s a word that I shy away from. Inspirational people are the ones that didn’t need to get involved, inspirational people are the ones that pull on that vest and run. Inspirational people are the ones that say I’ll just keep going for you and all the while they spread the word about it and get more and more people involved. I’m just trying my best to keep moving and I’m having fun along the way.

Thanks to everyone that has helped me so far this year and thank you to the many thousands of people that are running to help someone on Sunday. Soak it up, it’ll be one of the best days of your life and the admiration, respect and jelly beans people will have for you along the route will be thoroughly deserved.


Many thanks Bernie and also to the thousands of others taking part on Sunday.



You can donate here >>>  https://www.justgiving.com/Martin-Hywood3

You can follow me on twitter here >>> https://twitter.com/HywoodMartin

#MoveAMileForMuscles

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